Archive for September 16th, 2007

His decline seems to go in “levels” with no noticeable happenings and then all of a sudden I’m so distressed with what I hear and see.

Suggested he turn the fan on #1 – I could tell immediately by his body language that he was “lost”. Just as I got up to help, he leaned over the piano and drew circles with his finger, trying to find #1. He has always been able to turn the fan on with no problem.

Suggested he clean out the litter box for his cat. We were in the bedroom at the time and as I headed out the door, he started searching for it – opening closet doors and the en suite. Then he said,”I don’t know where it is.”

Reminded him to go wash his hands after and “use lots of soap”. He very sweetly told me he didn’t intend to wash.

Is slowly losing memory of the 1990′s. That is really frightening to me as he had no problem with it. We were looking at photo albums and saw pics of him building the pool decking. I commented how strong he made it and he replied, “Did I build that?”

He always sleeps lots but now, unless I wake him, can easily sleep 18 to 20 hours. Usually I’ll wake him after 12 hours sleep. (Doc said let him sleep or get him up after 12)

He no longer wants coffee when he gets up – always enjoyed a coffee then.

Did I think he would remain status quo for ever? No, but it sure is upsetting to see the changes.
Anyway, not complaining, just commenting on what is happening.

I’m getting the RN to come again to evaluate him for home care. They suggest every year and it’s been 3. If things keep progressing, I may have someone in for a few days a week. If he is sleeping anyway, I may as well get my errands done and know he is safe – can’t leave him alone now. Plus, I’d like to meet my friends and have lunches and walks – which I can’t do now.

Any comments and suggestions are welcome – I appreciate others’ input.