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21st June
2008
written by JeanMac


What’s normal for us now sure wasn’t normal for us 6 years ago. It’s funny how time slips away and conditions that were just so upsetting no longer upset – they become our new normal.

Several years ago, I’d cry til there were no more tears. Didn’t change anything but suppose it helped. Part of my extreme upset was I didn’t know where this journey would lead us or what it would be like. To be truthful, I didn’t know what Alzheimer’s was – a few incorrect preconceived ideas.

While we were awaiting “official” diagnosis, my sister and husband attended a seminar sponsored by a local extended care facility. She called me at work to say they’d been there and I remember so clearly asking, “Is it a condition or a disease?” She answered, “Disease.” To be honest, don’t think I responded but remember feeling like I had been kicked in the stomach. Was still working and the remainder of the day was difficult.

Fortunately, most days seem normal – that is, normal for us. I have to admit, I feel pangs of jealousy when couples write about pending holidays, etc. Actually, I’m very happy for them but a tad jealous at the same time – just being 100% honest. In the next breath, I implore people to get away and enjoy their days – never know what may lie ahead.

We used to get away often and do “mini” trips to the States. Am I glad we did that. Last night Brian asked me the last time we spent in the States – “September 2003″ – we were both kind of shocked – he knew it had been a while.

Something that helped me immensely was “coming out of the Alzheimer’s closet”. Once I could freely talk about it to family and friends, it helped me conquer an unknown.

Sad to say, some of our acquaintances are not knowledgeable – I see the questions in their eyes and see them dodging issues. Some are wonderful and ask me how best to deal with things but many dodge the issue completely. It’s been a steep learning curve – hope if anyone I know suffers a diagnosis of any disease, I will learn as much as possible about it for their and my sake.

I guess what brought all this to mind – I just helped him wash up – if someone told me a few short years ago that he would not be capable of taking care on his own, well, I’d have not believed it.

Blogging has helped and actually, I am surprised to read certain entries from several months ago – you forget the slippery, gradual decline. Thank you to all you folks who read our blog and offer support and suggestions.

12 Comments

  1. Beverly
    21/06/2008

    I am so glad we can help. I think you have so much courage to be able to share your world with us. It, for some reason, helps me to know that my experience with my mother can offer help to you.

  2. JeanMac
    21/06/2008

    Thanks, Beverly, much appreciated.

  3. jan m
    21/06/2008

    I think nature shows its gentle side, when it allows things to progress slowly, giving us time to adapt and adjust, till we know no other way, and can accept what is.

  4. KGMom
    21/06/2008

    Blogging becomes a record of events, and memories, doesn’t it.
    Your last post before this one–on reading–reminded me of my mother-in-law who spent a weekend with us when she was quite far along in Alzheimer’s. I had bought a half dozen magazines, thinking she would take some time to read them. She thumbed through them very quickly, and was DONE.

  5. kenju
    21/06/2008

    As I have said before, you are providing a great service in making us aware of what goes on.

  6. Ruth
    21/06/2008

    It is a good thing we cannot see the future. It is enough to live a day at a time.

  7. annie's eyes
    21/06/2008

    I’ve missed you the last few days and am just now catching up. I wished we could bottle up those good times and sprinkle them out again when we need a good day to intersperse with the bad. Your words often make me go hug my husband, or just sit back and drink in life–it’s so precious and fragile. Always in my prayers, Annette

  8. 30 years from Darling
    22/06/2008

    Hi, my name is Peggikaye (Pk works great)
    Wendy sent me over here.

    My mom has a form of dementia that is as of yet, undiagnosed. Suspicion is possibly vascular, but …questions still loom large.

    I’m also primary caretaker for my husband with severe respiratory issues because of post polio syndrome.

    I’m in that sandwhich generation ..teens in the household, and caring for a parent. The spouse thing caught me by surprise, although, it shouldn’t have.

    It’s nice to meet you.

    Pk

  9. Beverly
    22/06/2008

    I understand the title of your post.

  10. Wendy
    22/06/2008

    Looks like we are travelling the same path. It was 6 years ago Hubby was diagnosed with COPD – and yes, I cried my heart out – many times over. But now, COPD with all its limitations, has become our normal.

    And I also feel a tad jealous when couples plan their holidays or parties. We haven’t been away together since 2001.

    And coming out of the closet helped me too. Not him. He still hides, but now I can talk openly and it does feel better. Now people understand why I don’t socialize any more.

    Oh, and blogging – I’d be lost without it. Putting my feelings and thoughts down and reading other peoples’ responses is very healing.
    God bless, Jeanmac. It’s a difficult road.

  11. JeanMac
    22/06/2008

    That’s a good observation,Jan.
    Donna,this blogging is a record for sure. I think it’s great for families.
    Thanks, Judy,I’m glad it’s enlightening.
    Ruth, I’ve often thought that – and one day at a time is enough.
    Keep on hugging him, Annie.
    Thanks for dropping by, Pk.Thinking of you.
    Beverly, I think of you so often.
    Wendy, take care of yourself, thanks for sending Pk my way.

  12. Mary
    23/06/2008

    Jean,

    I’ve enjoyed laughing and crying with you. You are so honest and you have a dear heart.

    I wish there was more we all could do but listen. This journal keeps you sane :o )

    Mary