1st February
2009
“Joy” on the sidebar really describes his days and my love for him.
Many thoughts are broken – he develops the thought but it gets tangled up before he can act on it or process it.
I have decided to write some things that happen every hour, every day. For many months I held off as it’s a difficult read for our sons and family – but this is Alzheimer’s and this is our life.
(Please do not feel badly for us. I want to be able to write as our daily life is. I haven’t (to date) as it is so bizarre sometimes, I’m sure one would think I’m creating fiction. Thanks.)
Write away – it’s how we process our stuff.
Hugs
As I read you each day I remember to pray for you and your love. Write – it’s good for you and it’s good for us.
Susan
Wendy, thanks.
Susan, welcome. Hope it does help all of us.
Reading your story is so helpful to each of us, Jean. If it happens in our families, we will know something of what to expect. I cannot help but feel badly for what you are going through, and I temper that with prayer for you both.
I for one appreciate the fact that you share with us. You are teaching us all so much. I can understand how it would be hard for your family and close friends to read it. Plus, if it helps you that is the greatest thing of all. You are showing a picture of true, unconditional love and one of “in sickness or in health, till death us do part”. What a testimony you are weaving and what a legacy. Blessings on both of you today and every day…Mary Lou
Add me to the list of those who appreciate everthing you share with us. I know some of it may be hard to write, and some may be hard to read, but sharing difficult experiences makes them easier to bear.
Your story is amazing, but more amazing is your attitude and the way you tell your story.
You should be free to write whatever you want/need and even if those of us find ourselves lost for words to respond, we are grateful for this uncharted journey you are sharing.
Jean, I appreciate your vignettes of daily life, which so echo my own with Dad. It makes me feel not so alone.
It is what it is. I say that to myself a lot. And while it does get sad and discouraging, we are not unhappy most of the time, if that makes sense. There are still a lot of good moments.
Praying for you and W.
Love, Laura
Yes, please share with us as it helps me to understand what my brother in law is dealing with and maybe I can have some insight or tips to share with him as he takes this same walk with his beloved wife. I still feel so bad when I think back after I’d run into my sister in law at the grocery and she’d be very aloof like she barely knew me. (before she was diagnosed) I’d go home and rant to my husband about her “snubbing” me. I wish I’d known.
Sometimes it’s hard for me to know what to write exactly. I’m glad you wrote this Blog today. I think about you often. I think you’re a woman of courage. I’m glad there is so much love there between the two of you. Love your poem.
having also lived with with this disease with my dad, everything you have written so far is what my dad did or said, if you’re living the situation, the bizarre becomes the norm. Every family with a alzheimers patient can understand what you are going thru
Writing these little slices of our lives and our observations about them gives promise to the fact that we were here and engaged with everyone.
Snippets of life, thrown out there for their beauty or horror, each seen through different eyes or perspectives.
Go Jean,
Ice
Hi Jean, You keep writing away we’re with you.