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9th March
2009
written by JeanMac

He has been sitting here dreaming – then awake for short periods.

His dream face shows the happiest smiles and then he chuckles aloud. The next face is a grimace and jerky body movements. If only I could plug in and download what’s happening.

A few minutes ago, he asked where older son was, does he have all his stuff? Then he walked to the guest room and said must be sleeping yet, the door’s closed. Don’t want to wake him. In the next breath he wanted to talk to him – so I called our son at work – something I hesitate to do. Dad talked in a confusing way – Mark was able to say words to calm him. I could barely talk to our son, it’s so upsetting. If it’s upsetting for me, how about him?

What’s happening and where are we in this journey?

Update: Our dear Doc took the call and will see him Tuesday at 5:30

15 Comments

  1. Wendy
    09/03/2009

    Wish I could help, JeanMac, but it sounds like the AD is taking it’s toll on his brain.
    Very sad.
    I’d have called my son too and let him in on things with his dad.
    Hugs

  2. KGMom
    09/03/2009

    It does seem as though you are at some transition point. Of course, the question is–transition to what?
    Hope the doc can help.

  3. Mary Lou
    09/03/2009

    Praying….hugs….peace

  4. kenju
    09/03/2009

    Jean, I wish there was something we could do to help. Hang in there.

  5. Chatty Crone
    10/03/2009

    I think it’s good you called your son too. You need someone your close to – to know and help you too. Praying and hugs too. Hope the doc can help.

  6. ^..^Corgidogmama
    10/03/2009

    So many changes lately.
    You must feel as if you’re in a whirlpool somewhat.
    We’re all hoping for the best…
    and hope you are able to keep meeting your demands as they come.
    God bless you.

  7. Changes in the wind
    10/03/2009

    Today is Tues. will be waiting to hear what the Doc has to say. He does seem to have slipped a little further away and into unknown territory. Just know you are doing everything you can.

  8. Smart Mouth Broad
    10/03/2009

    It’s not much but sending hugs your way.

  9. Scarlet
    10/03/2009

    I can picture the scene and it breaks my heart. I’m here for you, friend.

    I pray that God gives all of you the courage and strength you need to make it through each day with love and peace in your hearts.

    Again, I’m here for you.

  10. smrp
    10/03/2009

    Hi Jean,
    Just checking in to see if you have an update. I am thinking the best thoughts and hoping the doctor offered some good insights…
    Thinking of you both, and your family,
    Sue

  11. Poppy
    10/03/2009

    Im new here, but Ive been reading your blogs for the last hour. I am keeping you and yours in my prayers. Keep the faith!

  12. annie's eyes
    11/03/2009

    Remember when we swept monsters out from our children’s beds and shooed them all away. Our children’s fear was real, but we knew they were safe, and were able to talk them into peace. When you called your son, he did just that for Wayne, and though he might have forgotten, he felt better. His disrupted sleep is something the doctor should be able to help with. I can’t imagine how weary you are, and wish I could shoo all the real monsters away for you. Let us know how the visit with the doc goes. Love and hugs, Annette

  13. midlife slices
    11/03/2009

    I’ve been wondering if the Doc had been able to help or not. I hope you get some answers and things settle back down for all of you.

  14. Dog_geek
    11/03/2009

    I’ve been thinking of you Jean. I hope the doctor was able to give you some help. (((Hugs)))

  15. Laura in L.A.
    11/03/2009

    Jean, there is a little silver lining in this. W thought of his son and wanted to talk to him. That is huge, especially as we get deeper into this disease.

    The blessing and the curse of being the long-distance child of someone with AD is that you don’t see the day-to-day changes, so it can be jarring to see a big decline. But it is what it is, and I know your sons and the rest of your family want to help you and support you as much as possible.

    Praying for you and W.

    Love, Laura