So, not sure if all caregivers go thru sleep deprivation but I’m #1 in that dept.
Home care called last night to reschedule our time – only by 45 minutes earlier. “No problem!”
After very little sleep, I peeked at the clock, 8 a.m. – wonderful, I’ll shower and, and, and “What!!!” It’s now 10:30am and I flew out of bed. Opened the door and there she was – talking to scheduling, wondering if I had gone out, etc. At least she had a comfy chair to sit in among our flowers!
Guess it’s time to call Hotel Sister again – whenever I sleep at my sister’s, I just am so well rested – but she gets no sleep worrying about his getting out!
If this continues, I will pay for 12-8am care aide and I’ll go sleep downstairs. Doing my level best to keep Wayne home but I need sleep – I’m not blaming him – it’s the whole disease process.
BTW, Alzheimer’s, have I told you lately that I hate you? Yes? Well, still hate you.
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4 Comments
Being without sleep it hard! I know your sister – while it is effort on her part – is glad to do that for you.
I hate Alzheimer’s too.
That’s what sister’s are for and I’m sure she’s happy to be able to help in any way she can.
Being sleep deprived isn’t good for anyone (trust me, I know this well right now) and since you need to be on your toes at all time, you need your rest. Take it any way you can, my friend.
Prayers and hugs….
Please take care of yourself. You can’t lose sleep and take care of him, our minds don’t work to well when we don’t get enough sleep. You are doing such a good job of taking care of him. The nasty disease is to blame for it all. I am so sorry and I am right there with you hating it…
Get that care aide soon. Lack of sleep can ruin your judgement and zap your health, as well as giving you unwanted “time-outs”, where you doze off for micro-sleeps, just when you need to be alert.
I was caring for an aunt with Parkinsons some years back. She needed to be moved frequently, day and night, because her muscles seized up and became very painful. So I was sleeping in short shifts; too short, too few. After a few months of this, my doctor gave me an ultimatum: either my aunt went into a care home, even temporarily, or I went into hospital and my aunt went into a care home, probably permanently.
We took the first option. My aunt was miffed, but at least I was able to keep visiting her, and she had good care by people who were fully awake.